Monday, May 20, 2013
Monday, May 20, 2013

Patient #1

My name is T.J. Sharpe. I'm a father, husband, brother, friend and fighter- of Stage 4 Melanoma. Ultimately the war on "Father Time" can never be won, but this is one man's tale on how I am fighting to keep that battle going for years..

34 comments

Patient #1

POSTED: Tuesday, January 1, 2013, 5:30 AM

My name is T.J. Sharpe. I’m a father, husband, brother, friend and fighter– of Stage 4 Melanoma.

You will be reading about a battle with cancer, but that is just the backdrop for this story - one that really focuses on life, health, family, and the challenges we all face every day to win our little battles. Ultimately the war on "Father Time" can never be won, but this is one man's tale on how I am fighting to keep that battle going for years.

I’m a South Jersey native and a 1993 graduate of Bishop Eustace. I parlayed an education and some success on the football field to gain admission to Carnegie Mellon, a Top 25 university in Pittsburgh – one that probably wouldn't accept me now, and likely would not have in 1993 either – without a little help from the athletic department.  Regardless, a door was opened to another fantastic school, and four more years of football at the Division III level, where our biggest perks were the occasional travel meal money and some free grey t-shirts that I still wear today.  At both schools, I was able to get a great education, play the sport I loved, and establish lasting relationships with more good people than I can easily count.  

After college, I became an IT consultant, first based out of Hoboken, NJ, then Haverford, Pa., before relocating in 2004 to Fort Lauderdale, Florida, where I currently reside. There, I met a native Floridian (they do exist!) lawyer, married Jen in April of 2008, and now have two wonderful kids – 2-year-old Josie and 5-month-old Tommy.  I love living in the Sunshine State, have met many great friends, and even have raised a little girl who is a Phillies and Flyers fan (Jen and I drafted teams for our children's allegiance; the Dolphins went first, followed by the two Philly teams, then the Heat. The top 3 picks have vastly underachieved).  However, my roots are still in the Delaware Valley, and I will always call Philadelphia, South Jersey, and The Shore “home.” 

My very enjoyable life – not perfect, but certainly very blessed and lucky – sort of came to a screeching halt in early August 2012.  With Jen and the kids visiting her brother/sister-in-law and their new baby, I spent a weekend trying to recover from a spiking fever that reached 103.8 degrees.  After admitting Advil, Gatorade and Won-Ton soup were not getting the job done, I reluctantly checked into Broward General Hospital and was fairly quickly informed that multiple legions, likely cancerous, were causing my illness. Tests over the next several days confirmed the presence of tumors in my lungs, spleen, liver, and the granddaddy of tumors – an 8-cm one pressing against my small bowel.  Stage 4 melanoma was the diagnosis – considering that "Stage 5" involves a priest and a funeral director – this was as bad as it can get. Over a 16 day stay, I lost 30 pounds, had my small bowel tumor removed, and started preparing for a long battle with cancer.  Testing also confirmed this was a recurrence of a malignant melanoma that I had removed twelve years prior in 2000, despite all sunscreen, floppy hat, and long-sleeve precautions taken. 

After being released from the hospital, we set out to find the best course of treatment (one you will read about in the coming posts) ultimately settling on Moffitt Cancer Center in Tampa, FL and a clinical trial which combines a new FDA-approved drug (Yervoy) with an existing experimental treatment involving my own t-cells.  This treatment has never been tried in this order before – basically shoving the t-cell part in between the Yervoy treatments. So, as far as the doctors can tell, I'll be the first person on the planet to give this a shot – hence, "Patient #1."  

Numbers on partial/complete survival rates vary by many factors, but it seems consistent there is about a 15 percent long-term survival rate of patients with Stage 4 melanoma – and the average lifespan, depending on treatment, can vary between 6-24 months.

These numbers painted a pretty grim picture for Jen and I as we digested them, but they are not absolutes, and all the different factors that could push odds in my favor leaned my way: a relatively healthy man in his mid-to-late-30's (OK, OK... 37 is late 30's... indulge me here) with access to the best medical care possible; a supporting network of family and friends; an employer who has given me as much time as I need to get better; a prior history of beating cancer already; and most of all, a positive outlook.  

I am not letting cancer define me – no more than I would let my inherited receding hairline, semi-athletic build, or lack of fashion – be more than a fringe description of who I am. I am not just T.J. Sharpe: the tall bald guy in the Jimmy Buffett t-shirt and Phillies hat –or– T.J. Sharpe: the cancer survivor.  And I am certainly not going to be T.J. Sharpe: the statistic.  Patient #1 has a lot of living left to do.  This is my story...

Editor’s note: T.J. Sharpe will be blogging for Philly.com/health throughout his fight with Stage 4 melanoma. Check back for his next post, which further details his cancer diagnosis and delves into the clinical trial that makes him “Patient #1.”

34 comments
Comments  (34)
  • 0 like this / 0 don't   •   Posted 9:56 PM, 12/19/2012
    We love you buddy!
    phils-a-holic
  • 0 like this / 0 don't   •   Posted 1:17 PM, 12/19/2012
    Hi TJ,You don't know me but I know Sue [Bomberger] and just wanted to add my support as I read your story and admire your courage. I've been in your shoes with cancer so I know what it is to be one of "them" but I ended up getting through it and now know how delicate the balance of life feels. As Jimi Hendrix sang "Are You Experienced?" we both are with cancer, so my heart, thoughts, and prayers go out to you, as a survivor. As a side note, which may or may not be an option for you, check into the MD Anderson Cancer Center at http://www.mdanderson.org/ for cutting edge treatment. I was shocked to find that our BC/BS insurance covered my hospital bills because I live in Ocean City, NJ and they're in Houston, TX, but apparently as long as they bill through the "local BC/BS system" our insurance covered 100%.You must really be of amazing character to have already endured all that you've been through and my hat goes off to you for your determination and courage. All the best,John HayOcean City, NJ (HTML deleted)
    John Hay
  • 0 like this / 0 don't   •   Posted 1:17 PM, 12/19/2012
    Hi TJ,
    You don't know me but I know Sue [Bomberger] and just wanted to add my support as I read your story and admire your courage. I've been in your shoes with cancer so I know what it is to be one of "them" but I ended up getting through it and now know how delicate the balance of life feels. As Jimi Hendrix sang "Are You Experienced?" we both are with cancer, so my heart, thoughts, and prayers go out to you, as a survivor.
    As a side note, which may or may not be an option for you, check into the MD Anderson Cancer Center at http://www.mdanderson.org/ for cutting edge treatment. I was shocked to find that our BC/BS insurance covered my hospital bills because I live in Ocean City, NJ and they're in Houston, TX, but apparently as long as they bill through the "local BC/BS system" our insurance covered 100%.
    You must really be of amazing character to have already endured all that you've been through and my hat goes off to you for your determination and courage.
    All the best,
    John Hay
    Ocean City, NJ
    John Hay
  • 0 like this / 0 don't   •   Posted 8:42 AM, 12/19/2012
    "Hail Mary" <3 U TJ
    Maui Deb
  • 0 like this / 0 don't   •   Posted 11:16 PM, 12/18/2012
    Amazing!
    Redhotpearl
  • 0 like this / 0 don't   •   Posted 9:07 PM, 12/18/2012
    TJ...as Rob and I said from the get go of this whole shebang... You are a true inspiration to all & your words belong out there for the world to read...to share...to create hope & fight this dreaded disease! We are with you in this fight & Cancer Bear is ready!!! From one survivor (and sporto) to another... "Let's K some C" :) formally known as K some A :)
    We love ya TJ!!! So proud of you!!!
    LIVESTRONG from all of us in Indy!!!
    Klee33
  • 0 like this / 0 don't   •   Posted 7:07 PM, 12/18/2012
    Don't give up. Never give up.
    F. Harry Stowe
  • 0 like this / 0 don't   •   Posted 6:43 PM, 12/18/2012
    prayers every step of the way...
    patseyann
  • 0 like this / 0 don't   •   Posted 5:05 PM, 12/18/2012
    Good luck, TJ! I actually work for BMS, the company that makes Yervoy. It's one of the products that I support. It's a good drug and has been very successful for many people. I'm going to share your story with our brand team. You're going to have a lot of people pulling for you and sending you good wishes!
    Helene36
  • 0 like this / 0 don't   •   Posted 2:32 PM, 12/18/2012
    Love it! There's a reason you are patient #1!
    lisa m
  • 0 like this / 0 don't   •   Posted 11:53 AM, 12/18/2012
    If only the Eagles can battle like you are, TJ... Great blog! Keep em coming, for a long time!
    PSUANIMAL
  • 0 like this / 0 don't   •   Posted 11:51 AM, 12/18/2012
    I am going to keep you in my prayers...my Brother, Ken recently passed of Stage 4 Melanoma...your story is so similar to his...please keep a positive attitude, as I feel that the positive attitude my brother had got him so much more time, more than even the doctors gave him...he never gave up, neve complained and lived life fully to the very end!! I pray every day for a cure for this horrible disease...so glad you are able to get current state of the art treatments...and I pray they help you...I am going to follow your progression and I am praying for a happy ending!!!
    colleen65
  • 0 like this / 0 don't   •   Posted 11:41 AM, 12/18/2012
    T.J., I am not saddened by your story, rather I am excited to stand beside you on this journey where you will beat this disease. I hope you have an excellent holiday with your family. I will be thinking of you and wishing you the best! Let's beat this thing!
    Big_Ben45
  • 0 like this / 0 don't   •   Posted 11:03 AM, 12/18/2012
    Praying for you!
    Jenice Armstrong
  • 0 like this / 0 don't   •   Posted 10:47 AM, 12/18/2012
    Keep fighting TJ. I am stage IV melanoma as well and have two children about the same age. I completed Yervoy as well and we are hoping it works! In the meantime my wife and I are celebrating life and the Christmas season. Good luck, brother. Thanks for writing.
    Han Solo
  • 0 like this / 0 don't   •   Posted 10:37 AM, 12/18/2012
    Fight! Fight! Fight!!!!! We'll all be wishing you the very best in this battle!
    bingbangbong
  • 0 like this / 0 don't   •   Posted 10:33 AM, 12/18/2012
    To the extent that a positive attitude affects outcomes, you're in great shape. Keep refusing to be someone else's statistic. Best wishes to you & your family.
    HorshamGuy
  • 0 like this / 0 don't   •   Posted 10:29 AM, 12/18/2012
    Best of Luck TJ...
  • 0 like this / 0 don't   •   Posted 9:31 AM, 12/18/2012
    You are a strong man and will defeat this!!
    The Baron
  • 0 like this / 0 don't   •   Posted 9:30 AM, 12/18/2012
    We're all with you TJ! Keep up your fight my friend.
    Chad Heald
  • 0 like this / 0 don't   •   Posted 9:23 AM, 12/18/2012
    TJ: God Bless you and your family! We will be praying for your speedy recovery. Remember - one small miracle at a time!
    USAFirst1
  • 0 like this / 0 don't   •   Posted 9:23 AM, 12/18/2012
    Best writer ever. TJ, Jen, and fam: the Crawfords believe in you.
    L.Crawford
  • 0 like this / 0 don't   •   Posted 9:09 AM, 12/18/2012
    Glad to see you're going to be sharing your story to the world. Keep fighting TJ!
    AdamDW
  • 0 like this / 0 don't   •   Posted 9:02 AM, 12/18/2012
    You are the man, T. Keep fighting, and keep being an inspiration to the rest of us! Romo couldn't hold your jockstrap. Go Birds!- P. Zukowski
    bdizzle
  • 0 like this / 0 don't   •   Posted 9:02 AM, 12/18/2012
    TJ, good luck and don't forget the little things. I'm behind you and your fight 100%!
    Jeffritoe
  • 0 like this / 0 don't   •   Posted 8:38 AM, 12/18/2012
    Keep fightin T. Were all with you. Merry Christmas to yours. Go Birds!
    eradetich
  • 0 like this / 0 don't   •   Posted 8:38 AM, 12/18/2012
    Good luck T.J. My cousin in CA. is also battling stage 4 melanoma and so far has been beating the odds. I will keep you in my prayers. Enjoy the holidays and keep fighting. And go Phils.
    Phishface
  • 0 like this / 0 don't   •   Posted 8:36 AM, 12/18/2012
    Well done TJ. Love and Prayers. Merry Christmas!
    Cmomster
  • 0 like this / 0 don't   •   Posted 8:11 AM, 12/18/2012
    from one dad to another tj, you are the man - happy holidays to you and yours -
    dailydose
  • 0 like this / 0 don't   •   Posted 8:03 AM, 12/18/2012
    T.J., keep fighting ! You're in my prayers.
    EaglesPhilliesIrish
  • 0 like this / 0 don't   •   Posted 7:48 AM, 12/18/2012
    I am not an oncologist but work in the oncology field advising drug companies on how to market new drugs like Yervoy. Yervoy is an extraordinary drug and likely can improve the effect of the T-cell immunotherapy. Yervoy definitely increases long-term survival rates beyond 15%, perhaps up to 25% according to Phase III trials. T.J., if you have a progression on the current clinical trial, ask your MD about trials that give patients like you a PD1 antibody. These drugs could be a Super-Yervoy.
    GordonThorn
  • 0 like this / 0 don't   •   Posted 7:40 AM, 12/18/2012
    Yo T.J, God bless you and your family during this holiday and thru the new year! I look forward to reading how you kicked cancer's a......ss!
    Bustleton guy
  • 0 like this / 0 don't   •   Posted 7:36 AM, 12/18/2012
    Wishing you the best, TJ. I am in my 40's and have had three early melanoma's so this story hits close to home.
    luvnjshore
  • 0 like this / 0 don't   •   Posted 7:05 AM, 12/18/2012
    TJ....keep the faith....be a fighter!
    bbrady25


1
About this blog
T.J. Sharpe is sharing his fight against Stage 4 Melanoma. A South Jersey native and Bishop Eustace graduate, he currently lives in Fort Lauderdale, FL with his wife Jennifer and children Josie and Tommy. He is Patient#1 in a clinical trial at Moffitt Cancer Center in Tampa, FL, as the first person worldwide to use this sequence of treatments to fight melanoma.

The Patient #1 blog will update the progress of T.J.'s fight against cancer, and also touch on many cancer-related topics.

Follow T.J. on Twitter and Facebook, or e-mail him at Patient1@tjsharpe.com.

T.J. Sharpe
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