So the good thing about tumor regression is that, well, I get to stay alive awhile longer. The silver lining? That means I have to live – and life isn’t always the fun Keys trips and family times I tend to share. Sometimes, that means being a Dad, and a husband – roles I am plenty qualified to handle (well…), but can certainly present a challenge. Like Friday morning.
I’m typing this from the passenger seat of Jen’s SUV, while Tommy snoozes in his car seat. Before you call DYFS, it’s a temperate 71 degrees an hour before sunrise, and the windows are cracked. Faced with the decision of bringing this nocturnal beast back inside and risk waking him, or letting him (and, hopefully, Jen and Josie) continue to sleep, I grabbed my laptop, a Lara Bar, and some water, and have camped out until he begins to stir.
After failing to take a nap for the first time ever, Tommy crashed by 7pm last night – which meant he was awake before last call. And he’s been awake ever since. Jen tried all the normal tricks, but between being awake, recovering from being sick, and in the final phases of weaning off nursing, he wasn’t heading back to bed for her. One drawback of our parenting style of bringing the kids places and letting them adjust is that a “sleep schedule” is something we never really implemented. In the Sharpe house, bedtimes are guidelines based on the day’s progression and the evening’s activities. That means some nights (and subsequent following mornings) are earlier than others; it also means we get to deal with this on occasion.
So Daddy got the call from the bullpen. My sleep has been a bit off too – the 14th PD-1 dose was Wednesday, and a four-hour nap starting at 5 p.m. that afternoon really messed up my waking hours. But, this is when duty calls. I cannot solely focus on “recovery” if it means sacrificing Jen’s health, and sanity. She has pulled off solo duty on compromised sleep more times than I can count, so it’s time for me to pitch in too. Even if it means driving this kid around in the early morning hours. Or blogging from my driveway while he sleeps far away from the girls in the house.