Today's column is a tribute to Josh Winheld, a Facebook friend, who died Dec. 5, after three decades of living with Duchenne.
I was visiting my parents when he died, and I couldn't get back in time for the funeral. I was feverish when I wrote this piece on Friday, but there is no way a bad cold was going to make me miss marking his passing.
Not when I thought about what Josh went through every day.
In the end he carried a ventilator on his wheelchair. He had a trache inserted in his throat and a defibrillator in his chest to regulate his racing heart.