Web Search powered by YAHOO! SEARCH
TEXT SIZE: A A A A
Email this post | Back to Blog home
Friday, May 16, 2008
Excuse Me For Not Getting Up
Blog Image

“Excuse me for not getting up,” Msgr. Louis Marucci says, offering his hand. “It’s not going to happen.”

He’s received me in his rectory at St. Vincent Pallotti Catholic Church in Haddon Township to talk about the bad news — the Camden Diocese has announced plans to merge his parish with another.

And that move would force him from the only church in the diocese that is wheelchair accessible, make him give up the first parish he’s ever led, something he loves.

But first, a story.

It was 1987, he begins. He’d just been ordained as a priest, and he was starting to trip over his feet. “It just seemed odd to me,” he says. He had an hour to prepare his harp for a recital featuring “Variation on a Theme of Greensleeves.”

Only every time he tried to hit a flat or a sharp on the floor pedals, his right foot landed clumsily.

Doctors would wonder if he’d bumped his leg, causing nerve injury. Then his left foot went dead. Next he started seeing double.

When the tests were through, his diagnosis was multiple sclerosis. In August 1988 he was 29, and he’d lost the use of his legs.

“I wondered,” he says, moving his arms as if conducting an orchestra, “how was I going to function in a wheelchair, function as a priest?”

One moment gave clarity. It was that fall, 1988, and he was celebrating his first Mass in a wheelchair. Before his illness he used to greet parishioners after the service.

"I remember doing something very foolish my first Mass back. I grabbed a folding chair and I put it at the end of the aisle” for parishioners to sit on as he greeted them. No one did.

“My presumption was that people were going to enter my world. What I quickly learned was that if I’m going to survive this, I’m going to have to survive in their world.”

Now 48, he calls his disability his cross and crown. The cross is having an chronic disease that attacks the autoimmune system. The crown? He says MS has deepened his relationship with God. “I like to say that you never know you have a need for the Lord until you really have a need for the Lord.” And Marucci has needed.

At the same time, he is coping, and more. He found new ways of dressing and driving. He plays wheelchair racquetball.

There’s a story behind the poster-sized photograph on his door. It shows him at Breckenridge in Colorado, flying down the mountain in a specially contoured bowl with a ski mounted on the bottom.

“The most beautiful part,” he says, “is to ski in total control and to look down at your wheelchair parked by itself under a tree.”

He says he wouldn’t be the person he is today without his disease. He’s not sure he would have pursued a doctorate in biomedical ethics had he not become sensitive to the treatment of the gravely ill.

The first line of his thesis read: “My parents might have liked me to grow up to become a doctor, but instead I became a patient.”

After years of administrative work, he was given his first parish to lead six years ago. The church is accessible to the handicapped, and many people with hearing, sight and physical disabilities belong. Just this spring parishioners dedicated the space after raising more than $1 million for renovations.

He describes a service from two weekends ago where, when it was time to offer the gifts of bread and wine, a woman in a wheelchair was able to propel herself all the way up to the altar. St. Vincent Pallotti, he said, is a parish for all.

The church is to merge with St. Aloysius, a church that requires climbing five steps to worship. While parishioners are protesting and talk of appealing the decision to the Vatican, Marucci takes heart in the last letter from Bishop Joseph A. Galante. The diocese won’t make a final decision before an independent council examines the facilities’ accessibility.

“I see that as a possibility,” says Marucci, who has overcome obstacles before.

Posted by Daniel Rubin @ 5:26 PM  Permalink | 7 comments
SAVE AND SHARE
Comments
Comment removed.
Comment removed.
Posted by Blinq 04:19 PM, 05/19/2008
I smell a rat.
Comment removed.
Posted by Blinq 04:55 PM, 05/20/2008
really close. a reader won a cd by guessing them right when we redesigned it. bardot would have been an upgrade; it's britney. and on the second row, forget the father of our country, think of the father of blogging -- Ben Franklin. Buried under the BLIN is Hy Lit.
Comment removed.
Posted by M1nuteman 06:40 PM, 07/07/2008
Somebody is spouting just a touch of propaganda here. There are 3 doors into St. Als. One on Haddon, has 5 steps. One on Newton has 3(if I recall), the other has NONE. That door, the one facing the parking lot and the rectory, next to the handicapped parking spaces, leads right into the chapel.
7 comments
About Daniel Rubin

Since joining The Inquirer as a staff writer in 1988, Daniel Rubin has reported from 27 countries, but most of them were small. He's a metro columnist and has been the European Correspondent for Knight Ridder Newspapers. For two years he sat at home and wrote Blinq, the paper's first daily blog. Now we make him come to work. Dan began newspaper work in Norfolk and Louisville, Ky., after getting his undergraduate and graduate degrees from Northwestern University. He has lived in all four commonwealths, most recently in Pennsylvania, with his wife, twin teenage sons and a large, slobbering cowherd.

Visit Blinq 1.0 here.

Blog Roll
Local Interest
 
A List Of Things Thrown Five Minutes Ago
 
A Smoke-Filled Room
 
Afro-Netizen™
 
artblog
 
Attytood
 
Balls, Sticks and Stuff
 
Swing and A Miss
 
Blankbaby
 
blonde sagacity
 
Citizen Mom
 
Daily Sally
 
The BM Rant
 
How Appealing
 
iFlipFlop
 
philly
 
Philly Future
 
Tom Gralish's Photo Blog
 
The All Spin Zone
 
The700Level.com
 
slacktivist
 
Suburban Guerrilla
 
The Rittenhouse Review
 
Philebrity
 
Philadelphia Weather
 
Above Average Jane
 
Beerleaguer
 
Phillyist
 
Philadelphia Will Do
 
The Clog
 
This Urban Life
 
Changing Skyline
 
Books, Inq.
 
Philly Skyline
 
The Casual Critic
 
Philadelphia Restaurants
 
Skaroff Blog
 
The Long Cut
 
The Smedley Log
 
Young Philly Politics
 
Politics Philly
 
Philly Burbs Blogs
 
Mental Hopscotch
 
The Daily Jive
 
TheIlladelph
 
The Phanatic
 
Mere Cat
 
Starting A Landslide In My Ego
Poli Sci
 
Booman Tribune
 
My DD
 
skippy the bush kangaroo
 
Brad DeLong
 
pandagon
 
lgf the terrible infant speaks
 
The Daily Howler
 
War & Piece
 
Digby
 
Instapundit
 
Informed Comment
 
The Huffington Post The Front Page
 
Pajamas Media
 
Daily Kos
 
Power Line
 
Power Line
 
Eschaton
Foreign P.O.V.
 
signandsight
 
Der Spiegel Online
 
Guardian Unlimited Newsblog
 
Global Voices Online
 
Economist.com
 
BerlinBites
Media Mania
 
Daou Report
 
Blogspotting - BusinessWeek Online
 
CJR Daily Home
 
First Draft by Tim Porter
 
Hypergene MediaBlog
 
Online Journalism Review
 
Poynter Online - Romenesko
 
PressThink
 
Reflections of a Newsosaur
 
editorsweblog.org
One-stop
 
BuzzMachine... by Jeff Jarvis
 
DeepBlog
 
Joho the Blog
 
Technorati
 
The Command Post - A Newsblog Collective
Arts, Culture, Cheap Thrills
 
Some Velvet Blog
 
Stereogum
 
songsillinois
 
Said the Gramophone
 
Music (for robots)
 
Largehearted Boy
 
Wonkette
 
WFMU's Beware of the Blog
 
THE TOFU HUT
 
Spoilt Victorian Child
 
Blackmail Is My Life
 
Gawker
 
Fluxblog
 
Blogcritics.org
 
ArtsJournal Blog Central
 
Arts and Letters Daily
It's Technical
 
Slashdot News for nerds, stuff that matters
 
Gizmodo
 
Dynamist Blog
 
Boing Boing: A Directory of Wonderful Things
Categories
Archives
 
July
 
June
 
May
 
April
 
March