Sunday, November 23, 2014
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June 14: Amplified Musculoskeletal Pain Syndrome 5K Run and Walk

The Childhood RND Educational Foundation, Inc. is hosting the event, which will benefit The Children's Hospital of Philadelphia AMPS Center. The race will take place at Cooper River Park in Pennsauken, NJ on June 14.

June 14: Amplified Musculoskeletal Pain Syndrome 5K Run and Walk

Come raise awareness about amplified pain syndromes in children by participating in the Amplified Musculoskeletal Pain Syndrome (AMPS) 5K Run and Walk next month, which will benefit The Children’s Hospital of Philadelphia AMPS Center.

Hosted by the Childhood RND Educational Foundation, Inc., the race will take place at Cooper River Park in Pennsauken, NJ on June 14 at 9:00 am. At the end of the race, all participants are invited to attend a post-race celebration, where prizes will be given out to the top fundraisers and runners of different categories.

Amplified musculoskeletal pain syndromes are intensely painful conditions where the nerves send strong pain signals to the brain even though there is no damage to the body.  Some amplified pain conditions are complex regional pain syndrome (CRPS) — formerly known as reflex sympathetic dystrophy (RSD), fibromyalgia, reflex neurovascular dystrophy (RND), myofascial pain syndrome, localized amplified pain, and diffuse amplified pain.

"Awareness of AMPS (which includes CRPS (or RSD) and childhood fibromyalgia) is important since many of these children go for a prolonged time getting a lot of testing done and trials of medications that do not help. The average duration between onset of symptoms and diagnosis is about one and a half years," said David Sherry, MD, the section chief of rheumatology and the director of the Amplified Pain Program at Children's.

Sherry said at least 10 percent of children presenting to pediatric rheumatology clinics have a form of amplified pain and it seems to be increasing not only in frequency, but also in severity.

"It is generally very incapacitating in the kids who make it to our clinic. These children and their families do not know what to tell the school, family and friends what is wrong and everyone wonders why they are not getting better. Better awareness can lead to a more timely diagnosis and getting their life back sooner,"  he said.

The Children’s Hospital of Philadelphia AMPS Center is one of the few inpatient programs in the United States where children and teenagers can go for AMPS treatment to reduce disability and pain levels so that they can return to school and lead a normal life, according to a Children's press release.

To register or for more information about the race, go to the Childhood RND Educational Foundation, Inc's Website.


 

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Anna Nguyen Healthy Kids blog Editor
Stephen Aronoff, M.D., M.B.A. Temple University Hospital
Peter Bidey, D.O. Medical Director of Family Medicine at Philadelphia College of Osteopathic Medicine
Christopher C. Chang, MD, PhD, MBA, FAAAAI, FACAAI Associate Professor of Medicine in division of Rheumatology, Allergy and Clinical Immunology at UC Davis
Mario Cruz, M.D. St. Christopher’s Hospital for Children, Drexel University College of Medicine
Katherine K. Dahlsgaard, Ph.D. Lead Psychologist - The Anxiety Behaviors Clinic, CHOP
Magee DeFelice, M.D. Division Chief of Allergy and Immunology at Nemours/Alfred I. duPont Hospital for Children
Gary A. Emmett, M.D. Director of Hospital Pediatrics at TJU Hospital & Pediatrics Professor at Thomas Jefferson Univ.
Hazel Guinto-Ocampo, M.D. Nemours duPont Pediatrics/Bryn Mawr Hospital
Rima Himelstein, M.D. Crozer-Keystone Health System
Jessica Kendorski, PhD, NCSP, BCBA-D Associate Professor in School Psychology/Applied Behavior Analysis at Philadelphia College of Osteopathic Medicine
Anita Kulick President & CEO, Educating Communities for Parenting
Janet Rosenzweig, MS, PhD, MPA VP for Programs & Research for Prevent Child Abuse America
Beth Wallace Smith, R.D. Children's Hospital of Philadelphia
W. Douglas Tynan, Ph.D., ABPP Director of Integrated Health Care for American Psychological Association
Flaura Koplin Winston, M.D., Ph.D Scientific Director of the Children’s Hospital of Philadelphia’s Center for Injury Research and Prevention
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