I received the following poignant and personal letter about stillbirth and pregnancy loss from a reader. She will be joining me live at this site on Tuesday at noon.
Dear Dr. Gottlieb,
On December 22, 2008, my second daughter Lucia Paz was stillborn at 38 weeks. I am a thirty-five year old woman, who had two normal pregnancies. My first daughter is now twenty-two months old. She is a beautiful girl, and we were happy to welcome our second daughter. No, scratch that, not happy, ecstatic.
Though Lucy had been monitored only three days before, I had noticed a distinct lack of movement on Sunday. Certainly, with a toddler, and getting physically ready to welcome a baby into our home, I wasn't paying close attention to her movements, but when I sat down after dinner, there was nothing. I began to get nervous, and we called our midwives group. They urged us to come into the hospital where we found out our little girl was gone.
Though we are awaiting the autopsy report, there appears to be no definitive reason for Lucia's death. She simply died. These are hard concepts to wrap your brain around as a mother, nay, as a human being. We expect reasons for things. We expect a kind of justice in the universe. Before Lucia's death, I had no idea how prevalent stillbirth The reason I didn't know about this is because it is still a taboo subject in this society to discuss birth loss.
After people found out Lucia died, they just simply did not know what to say, or what to do. It doesn't occur to most people that I am still postpartum, that my milk came in, or even that I had to give birth to her knowing she was dead. People say different things to the loss of a baby before they have taken their first breath, as though I wasn't necessarily attached to her yet. But she is a missed human being, but she was also part of our future, the idea of our family…everything has changed about us. Once upon a time, we imagined our family with perhaps three or four children, we are now not sure if we can even bear to have another pregnancy.
Six weeks after her birth, I realize I'm not exactly one of those grieving mothers who crochets angel pillows for every room of the house, nor have I ever referred to Lucy as my little angel baby. My daughter is dead. It is a mantra I have repeated for six weeks now, every minute, like I am memorizing a poem, or lines to a maudlin play I am in. "My daughter is dead. My daughter is dead." It is as though I am still trying to remember that she is dead. Whatever I find out about how she died, she will still be dead. When I go for a walk, Lucy is still dead. If I have another baby, Lucy is still dead. You want to cut in front of me in line? My daughter is dead, go ahead.
At any rate, I have been writing extensively trying to make some sense out of the conflicting emotions of this time. Sometimes, I think I will awake from the nightmare of finding out my daughter is dead, and other days I think I dreamt the entire pregnancy and have awoke to find everything just like it was ten months ago. But mostly, I am learning how to live this new life, and trying to make myself whole for my daughter Beatrice. I'm doing a pretty good job.
And there is an incredible memoir about stillbirth by Elizabeth McCracken called the Exact Replica of a Figment of my Imagination. I felt like I could have written many sections of that book myself, but I had the urge to send that book to everyone I know, so they would understand what I am going through.
A.Y.
Dear A.Y., you signed off your letter saying "much love." And that really is the essence of the story. You hurt so badly because you felt so much love for this child. Love for the possibilities and love for your image of your future family. And now what? The child is gone, but the love remains.
Stephen Levine who wrote "Healing Unto Life And Death" said that grief is the rope earns left behind when what we have clutched so tightly is pulled from our grasp against our will.
But your grief is in its own category. Loss of a child is beyond what most of us can or would be willing to fathom, so we minimize or offer platitudes just so we can avoid facing your vulnerability and ours.
Your letter brings up so many important issues about the need to tell a story, to be in community again, to have the freedom to feel your anguish without judgment and some of the things that might help.
I look forward to getting to know you better on Tuesday,
Dan
Dr Dan, My 18-year-old son has been diagnosed ADD and bipolar and he was having a heck of a time in school (although his SATs are in the 600s) until he transferred to a military school where the strict regimen has helped him achieve first honors status, all-star status in hockey and, otherwise, has helped him live out a fruitful day almost every day. Now he's about to make the transition to college, has been home this weekend on pass, and all his old fears and anger have returned with a flick of that switch. In a nutshell, what can we do to help him get to college, where he will be much more independent that he is at private school, in roughly the same healthy state he's in when he's not at home with us? NMS
Dr. Dan, thank you so much for sharing A.Y.'s letter with your readers. Birth loss is still so rarely spoken about in our culture and there are no protocols to follow after a friend loses a baby in this way, the loved ones surrounding the grieving family are often tongue-tied or at such a loss for words that they do nothing, which I suppose can be worse than saying the "wrong thing." Thank you again for putting this pain out in the open, and I look forward to your webchat tomorrow with A.Y. insula
Many blessings to your letter writer for her long and rich journey of grief and healing. Our family "lost" (I still have a hard time with that word, even though I am blessed with three healthy living children!) our beautiful second son in similar circumstances nearly 18 years ago. Even today, his memory lives on in our hearts. And even today, very few people that I have ever met have understood, either from their own experience or intuitively, that our child, who weighed 8 pounds at his still-birth (at 39 weeks) and who like Lucia, already had a name, was not "my miscarriage" but our son. Thank you so much Dr. Gottleib for choosing this story as your first for your blog - you have given a great gift to those of us who are part of the small and oh-too-private club, in the modern world, to have had to live through this kind of tragedy. From a former Philadelphian, no longer able to listen to your program, happy now to read you! Friend of Fily
A good resource, for both professionals and parents/family, for understanding the varied aspects of pregnancy loss is "Loss During Pregnancy and in the Newborn Period," by James Woods, MD. It features many cases which all may find helpful. doman
A good resource, for both professionals and parents/family, for understanding the varied aspects of pregnancy loss is "Loss During Pregnancy and in the Newborn Period," by James Woods, MD. It features many cases which all may find helpful. doman
Thank you for addressing the tragedy of perinatal loss. We too lost our son, Ezra, almost 6 months ago when I was 34 weeks pregnant due to a placental abruption. Ezra was our first and only child thus far, and navigating the world as a babylost parent is heartbreaking. Most people do not understand that no matter what I am doing, whether I am smiling or crying, my son is always with me, I will always be his mama. Along with Elizabeth McCracken's extraordinary book which A.Y. mentions, there are a number of internet resources through which I have found extraordinary community, especially www.glowinthewoods.com A.Y., I am just so very sorry that Lucia is not in your arms where she belongs. skatzesq
There is a wonderful organisation called First Candle (http://firstcandle.org) whose mission is to support families who have experienced unexpected child death, no matter what the cause. Their focus was initially on SIDS, but stillbirths and unexpected infant deaths are equally a concern with them, now. On their web site there are links to services and support for grieving families and friends. I highly recommend the site and organization to your guest and anyone else. Trader
Hi Dr. Gottlieb, My son was born on Mother's Day of 06 and he died 3 days later in the NICU of the hospital where he was born. I was 33 years old and had a healthy pregnancy until the minutes I went into labor prematurely. There were no medical explanation. It has been almost 5 years, I'm still grieving today... It's a different kind of pain, not as raw, a "new normal" as they called it. But I've learned from the last 4 plus years that for some crazy reasons some people in our society thinks it's a taboo when I mentioned "my baby died". Some avoided me ever since, some practically ran away as I mentioned my baby's death, some said things like "you're young, you can always have another baby", "it happened for a reason", "he's an angel in heaven watching over you now".... While I understand most people meant well and they just don't know what's the right/wrong thing to say, I think as a society, the loss of a baby needs to be addressed. I believe in opened conversations. I don't want my son to be forgotten. I want to say his name. I shouldn't have to hide and pretend he didn't exist just because some people are uncomfortable talking about it. I believe most people are a little uncomfortable talking about death, but the loss of a baby is "un-natural" which shocks people. I know the writer of this extraordinary letter A.Y. personally and I'm so glad she decided to do this. And I truly hope this will help people understand a little more about this special kind of loss. Thank you so much for bringing the awareness of the pain of pregnancy/infant death. mimmy
Tears welled up in my eyes as I read this piece with the memory of the intense sorrow that Lucia’s parents are feeling right now. Shortly after the 911 tragedy my wife had a full-term stillborn, Rebecca-Rose. My wife was the picture of health during her pregnancy--she ate well, she swam every day, did yoga, and meditated. She looked absolutely radiant through her entire term. But still we lost the baby and there was no explanation. We spent the morning with Rebecca-Rose in the hospital and took turns holding her and saying our goodbyes. My wife’s milk came in and her breasts became painfully engorged, her belly still aplomb. Everything in our world felt bleak and hollow. I stumbled around helplessly, writhing in pain, wrestling with the surreal chain of events that had forever changed my life. We found an amazing guide for our journey. We’d meet with him weekly, and I can tell you, I resisted going every time. Like Pavlov’s dog, I’d feel a sickening feeling the moment we drove up his driveway. I knew I’d have to open up and face my feelings again and do this work. The gist of these sessions was to be present to the source of our feelings and to breathe into to the feeling to release it. We now have a 5 year old daughter named Maia who is in Kindergarten. We will forever hold RR close in our hearts and we cherish every waking moment with Maia. We unfortunately lost another baby last year at 26 weeks. When Maia draws pictures of our family, she always includes RR and Isabella. She asks about them often and wants us to try again. My heart goes out to you and your family as you process this loss. Keep the faith and do your work to heal. Process your feelings in a safe and healthy setting and you’ll slowly chip away at your grief. Lucia will always be with you. With Love, Eric, Jen and Maia. elitvin
A.Y. - I see you said you read my blog during the live chat. Email me via my profile sometime, I'd like to connect. skatzesq






